http://www.cff.org/Great_Strides/JessicaBabcock As many of you may or may not know our son Colby was diagnosed with Cystic Fibrosis at 3 weeks old. For those of you who do not know Cystic Fibrosis is a rare genetic disorder that affects only 30,000 children and young adults in the United States. This causes mucus to build up in the lungs and the digestive track, eventually causing life threatening lung infections.
As you can imagine Brent and I were devastated and immediately began our research and care for Colby. It was only about 10 years ago that children diagnosed with CF wouldn't make it past their first year of school. Now because of the Cystic FIbrosis Foundation children just like Colby have the capability to live well beyond their teens. Luckily our little Colby is a fighter! He makes monthly visits to his pulmonary team at Children's hospital. He arises every day to his first hour of treatment, which consists of inhaled medications and percussion therapy to break the mucus building in his lungs. Depending on his heath he will do this 2-4 times a day. Because Colby's digestive track is also blocked with mucus he takes enzymes prior to eating. As of now Colby will have to do this for the rest of his life, our hope for Colby and others like him is that they will not have to endure this much longer.
GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fund-raising event. This year, were walking in the GREAT STRIDES walk at the 2009 Walnut Creek - Heather Farms walk on 04/18/2009. There is two ways to help! You can join us in the walk by signing up under "Colby's Dream Team", or you can donate to help meet our goal. Nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education. Please help us help others for what is truly a great cause! You can learn more about Cystic Fibrosis at http://www.cff.org/.
As you can imagine Brent and I were devastated and immediately began our research and care for Colby. It was only about 10 years ago that children diagnosed with CF wouldn't make it past their first year of school. Now because of the Cystic FIbrosis Foundation children just like Colby have the capability to live well beyond their teens. Luckily our little Colby is a fighter! He makes monthly visits to his pulmonary team at Children's hospital. He arises every day to his first hour of treatment, which consists of inhaled medications and percussion therapy to break the mucus building in his lungs. Depending on his heath he will do this 2-4 times a day. Because Colby's digestive track is also blocked with mucus he takes enzymes prior to eating. As of now Colby will have to do this for the rest of his life, our hope for Colby and others like him is that they will not have to endure this much longer.
GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fund-raising event. This year, were walking in the GREAT STRIDES walk at the 2009 Walnut Creek - Heather Farms walk on 04/18/2009. There is two ways to help! You can join us in the walk by signing up under "Colby's Dream Team", or you can donate to help meet our goal. Nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education. Please help us help others for what is truly a great cause! You can learn more about Cystic Fibrosis at http://www.cff.org/.
2 comments:
The walk sounds like a wonderful idea, I'll talk to Cory about it. I"m sure he'd love to do it with you guys! We definatly need to get together soon and have a 'hair party' again...yeah the boys might not like it, but us girls need our pampering :)
I'm sure your due for a re-touch too!
Sounds like a neat walk...wish we lived there so we could "walk" with all of you! I hope you all are doing good and staying healthy!
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